Predominant Digest

The Nationwide Down Syndrome Society (NDSS) applauds the introduction of the Charlotte Woodward Organ Transplant Discrimination Prevention Act to uphold the rights of certified organ transplant candidates who’ve a incapacity. NDSS envisions a world by which all folks with Down syndrome have the chance to reinforce their high quality of life, notice their life aspirations and develop into valued members of welcoming communities.

Launched by Congresswoman Jaime Herrera Beutler (R-WA) and Katie Porter (D-CA), the Charlotte Woodward Organ Transplant Discrimination Prevention Act prohibits discrimination towards people primarily based on their incapacity when in search of an organ transplant. This laws would uphold and implement rights established within the People with Disabilities Act of 1990.

“Regardless of federal protections, folks with bodily and mental disabilities are barred from receiving a life-saving organ in lots of states. This discrimination is a violation of their primary human rights,” mentioned NDSS Director of Authorities Relations Ashley Helsing. “Passage of the Charlotte Woodward Organ Transplant Discrimination Prevention Act will save numerous lives of individuals in dire want of transplants.”

If handed, the Charlotte Woodward Organ Transplant Discrimination Prevention Act will be sure that an individual’s capability to adjust to post-transplant therapy necessities shouldn’t be a big cause to disclaim them a transplant process. Moreover, this invoice requires that well being care suppliers make insurance policies, practices and procedures accessible to certified recipients with disabilities.

The invoice is known as for Charlotte Woodward, an advocate with Down syndrome and member of the NDSS workers who acquired a life-saving coronary heart transplant practically 9 years in the past. Since then, she has advocated tirelessly to make sure others with Down syndrome and different disabilities have the identical entry to transplants.

“As one of many only a few folks on the earth with Down syndrome who has had the chance to obtain a life-saving coronary heart transplant, I’m so very, very grateful that folks with disabilities could have the identical alternative as I sooner or later,” mentioned Charlotte Woodward, for whom the invoice is known as.

“Up to now, too many treasured lives have been misplaced on account of discrimination in organ transplantation. I’m so very, very grateful for the generosity of my coronary heart donor and that of her loving household. Her reward has allowed me to dwell my life to the fullest and to go on to advocate for others to have the ability to do the identical. The passage of this invoice shall be a monumental step in direction of a extra simply world, and I’m proud to play a component in it.”

“There are misconceptions that folks with disabilities cannot handle the therapy wanted after an organ transplant or would not profit from such an operation – and people claims are merely not true,” Herrera Beutler mentioned.

“Charlotte Woodward is an excellent girl with Down syndrome who can be the namesake for this legislative answer. Charlotte has been sharing her expertise of efficiently receiving and managing a coronary heart transplant to be able to put an finish to this discrimination and assist extra folks obtain the life-saving reward of organ donation. I am proud to introduce laws with my colleague, Rep. Katie Porter, to make sure that folks with disabilities aren’t turned away after they’re in want of life-saving organ transplant.”

State-level laws imposing non-discrimination insurance policies for organ transplants has been handed in 13 states, together with:

This federal laws would reinforce rights protected below the People with Disabilities Act and end-organ transplant discrimination throughout the nation.

NDSS has sources accessible to help these prepared to assist non-discrimination in organ transplantation for folks with disabilities.

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This quality-reviewed publication pertaining to our Incapacity Data part was chosen for circulation by the editors of Disabled World on account of its seemingly curiosity to our incapacity neighborhood readers. Although the content material could have been edited for fashion, readability, or size, the article “U.S. Federal Laws Prevents Organ Transplant Discrimination” was initially written by Nationwide Down Syndrome Society, and submitted for publishing on 2020/12/24 (Edit Replace: 2023/10/08). Must you require additional data or clarification, Nationwide Down Syndrome Society will be contacted on the ndss.org web site. Disabled World makes no warranties or representations in connection therewith.

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Cite This Web page (APA): Nationwide Down Syndrome Society. (2020, December 24). U.S. Federal Laws Prevents Organ Transplant Discrimination. Disabled World. Retrieved March 13, 2024 from www.disabled-world.com/incapacity/organ-transplant.php

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